Ad-Express and Daily Iowegian, Centerville, IA

CNHI/Southeast Iowa

January 17, 2013

Slate: Is the neurodiversity movement misrepresenting autism?

Much of what we know about autism has changed since my son Jonah was diagnosed in 2001, but the metaphors we use to conceptualize it have remained largely the same. Portia Iversen, founder of Cure Autism Now, writes in her book "Strange Son" that she thought of her son's autism as a "deep well" he had fallen into. Jenny McCarthy describes the "window" through which she struggled to free her son from his autism. Arthur Fleischmann states in Carly's Voice, his account of how his severely autistic daughter developed the ability to communicate using a keyboard, that "There was a wall that couldn't be breached, locking her in and us out." The more profoundly impaired the child, it seems, the more likely these images of physical barriers are to crop up, as parents search desperately for the "intact mind" (Iversen again) they believe is there, somewhere deep down, despite often brutal symptoms that suggest the opposite.

It's not just the hope of desperate parents that fuels this quest — although, as one of those parents myself, I would never underestimate our ability to persist in our hopes and efforts even in the face of abundant evidence. Over the past decade, our faith has been validated by the emergence of several seemingly low-functioning autistics whose "intact minds" have been revealed through their brilliant writing. These celebrities, including Amanda Baggs, Sue Rubin, Tracy Thresher, Larry Bissonnette and others, speak minimally, if at all, and require support for even the most basic of life skills. Yet their blogs, videos and written commentary — as seen on major networks such as CNN and in Academy Award nominated documentaries — have inspired countless parents around the world.

Jonah was 4 years old when he started writing in chalk on our driveway without ever having been taught — although his phrases, like "FBI WARNING," were admittedly less communicative than Carly Fleischmann's complaint, "HELP TEETH HURT." Despite that, I really believed, for many years, that Jonah would develop into the next Tito Mukhopadhyay, the Indian boy featured in Iversen's "Strange Son," who published several books of poetry despite autism so severe he was nonverbal; prone to constant, repetitive movements, or "stims"; and, not infrequently, disruptive, noncompliant, and even aggressive with his mother.

1
2 3 4 5 6 7
Text Only
CNHI/Southeast Iowa
  • 20140727-AMX-GUNS271.jpg Beretta, other gun makers heading to friendlier states

    In moving south and taking 160 jobs with it, Beretta joins several other prominent gunmakers abandoning liberal states that passed tough gun laws after the Newtown shooting.

    August 1, 2014 1 Photo

  • Screen Shot 2014-07-28 at 2.21.22 PM.png VIDEO: Dog 'faints' from excitement of seeing owner

    A reunion between a Pennsylvania woman who had been living overseas for two years and her pet schnauzer has gone viral, garnering nearly 20 million views on YouTube.

    August 1, 2014 1 Photo

  • Why a see-through mouse is a big deal for scientists

    A group of Caltech researchers announced in Cell Thursday their success in making an entire organism transparent. Unfortunately, this isn't any kind of "Invisible Man" scenario: The organism in question is a mouse, and the mouse in question is quite dead.

    July 31, 2014

  • Screen Shot 2014-07-31 at 2.12.55 PM.png VIDEO: Five-year-old doesn't want her brother to grow up

    Sadie, an adorable 5-year-old from Phoenix, wants her brother to stay young forever, so much so that her emotional reaction to the thought of him getting older has drawn more than 10 million views on YouTube.

    July 31, 2014 1 Photo

  • lockport-police.jpg Police department turns to Facebook for guidance on use of 'negro'

    What seems to be a data entry mistake by a small town police department in western New York has turned into a social media firestorm centered around the word "negro" and whether it's acceptable to use in modern society.

    July 31, 2014 3 Photos

  • The virtues of lying

    Two computational scientists set out recently to simulate the effects of lying in a virtual human population. Their results, published in the Proceedings of the Royal Society B, show that lying is essential for the growth of a cohesive social network.

    July 31, 2014

  • Sunburn isn't the only sign of summer that can leave you itchy and blistered

    You've got a rash. You quickly rule out the usual suspects: You haven't been gardening or hiking or even picnicking, so it's probably not a plant irritant such as poison ivy or wild parsnip; likewise, it's probably not chiggers or ticks carrying Lyme disease; and you haven't been swimming in a pond, which can harbor the parasite that causes swimmer's itch.

    July 30, 2014

  • Survey results in legislation to battle sexual assault on campus

    Missouri U.S. Sen. Claire McCaskill joined a bipartisan group of senators Wednesday to announce legislation that aims to reduce the number of sexual assaults on college campuses.

    July 30, 2014

  • An alarming threat to airlines that no one's talking about

    It's been an abysmal year for the flying public. Planes have crashed in bad weather, disappeared over the Indian Ocean and tragically crossed paths with anti-aircraft missiles over Ukraine.

    July 30, 2014

  • Sharknado.jpg Sharknado 2 set to attack viewers tonight

    In the face of another "Sharknado" TV movie (the even-more-inane "Sharknado 2: The Second One," premiering Wednesday night on Syfy), there isn't much for a critic to say except to echo what the characters themselves so frequently scream when confronted by a great white shark spinning toward them in a funnel cloud:
    "LOOK OUT!!"

    July 30, 2014 1 Photo

  • 20140729-AMX-GIVHAN292.jpg Spanx stretches into new territory with jeans, but promised magic is elusive

    The Spanx empire of stomach-flattening, thigh-slimming, jiggle-reducing foundation garments has expanded to include what the brand promises is the mother of all body-shaping miracles: Spanx jeans.

    July 29, 2014 1 Photo

  • Medical marijuana opponents' most powerful argument is at odds with a mountain of research

    Opponents of marijuana legalization are rapidly losing the battle for hearts and minds. Simply put, the public understands that however you measure the consequences of marijuana use, the drug is significantly less harmful to users and society than tobacco or alcohol.

    July 29, 2014

  • linda-ronstadt.jpg Obama had crush on First Lady of Rock

    Linda Ronstadt remained composed as she walked up to claim her National Medal of Arts at a White House ceremony Monday afternoon.

    July 29, 2014 1 Photo

  • Can black women have it all?

    In a powerful new essay for the National Journal, my friend Michel Martin makes a compelling case for why we need to continue the having-it-all conversation.

    July 29, 2014

  • 0729 OTT Picture veteran -T -M Veteran finally receives his medals OTTUMWA — A World War II injury may have saved the life of a U.S. Coast Guardsman from Iowa, but he lost friends and a box of military awards. Francis Hardy Harbour was born on Dec.16, 1919, in Drakesville. He joined the Coast Guard in 1941 as a mach

    July 29, 2014 1 Photo

Obituaries
Featured Ads
Poll

The Iowegian wants readers to think about the solicitation ordinance that will prevent groups or individuals from entering a roadway to solicit money. The Centerville City Council in June by a 5-0 vote passed the first reading of just such an ordinance. Public pressure and during a subsequent special meeting, the council voted 3-2 to table the ordinance. A second special meeting to discuss the solicitation ordinance is scheduled for 5:30 p.m. Thursday, Aug. 7 at City Hall. So, the question of the week is, "Do you or do you not support the ordinance to prevent solicitation of funds in city streets?"

A. I support the ordinance
B. I do not support the ordinance
C. Not sure
     View Results
Iowegian on Facebook